Futile medical care

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Futile medical care is the continued provision of medical care or treatment to a patient when there is no reasonable hope of a cure or benefit.

Some proponents of evidence-based medicine suggest discontinuing the use of any treatment that has not been shown to provide a measurable benefit. Futile care discontinuation is distinct from euthanasia because euthanasia involves active intervention to end life, while withholding futile medical care does not encourage or hasten the natural onset of death.^[1]

Many controversies surrounding the concept of futile care center around how futility is assessed differently in specific situations rather than on arguments in favor of providing futile care per se. It is difficult to determine when a particular course of action may fall under the definition of futile medical care because it is difficult to define the point at which there is no further benefit to intervention (varying from case to case). For instance, a cancer patient may be willing to undergo more chemotherapy with a very expensive medication for the benefit of a few weeks of life, while medical staff, insurance company staff and close relatives may believe this is a futile course of care.^[2]

A 2010 survey of more than 10,000 physicians in the United States found respondents divided on the issue of recommending or giving "life-sustaining therapy when [they] judged that it was futile", with 23.6% saying they would do so, 37% saying they would not, and 39.4% selecting "It depends".^[3]

The difficulty with the issue of non-treatment lies in the borderline with euthanasia, which is punishable by law in most countries. Euthanasia designates a practice (action or omission) whose aim is to intentionally bring about the death of a person, in principle suffering from an incurable disease which inflicts intolerable suffering, particularly by a doctor or under his or her control. In France, the situation of Vincent Lambert, for example, has been qualified as unreasonable obstinacy by his doctor and by several court rulings, but has remained a source of legal proceedings and societal debate for several years over whether stopping treatment would be euthanasia or not.

In France, the Code of Medical Ethics rejects the practice of "acharnement thérapeutique", while advocating palliative care. The aim of palliative care is not to hasten a patient's death, but to relieve pain, even if, to do so, caregivers sometimes use doses of analgesics or painkillers that risk bringing the moment of death closer.

Denmark recognizes patients right to refuse treatment.^[4]

The issue of futile care in clinical medicine generally involves two questions. The first concerns the identification of those clinical scenarios where the care would be futile. The second concerns the range of ethical options when care is determined to be futile.

Clinical scenarios vary in degrees and manners of futility. While scenarios like providing ICU care to the brain-dead patient or the anencephalic patient when organ harvesting is not possible or practical are easily identifiable as futile, many other situations are less clear.

A study in the United Kingdom with more than 180,000 patients aimed to define a timeframe for quantitative futility in emergency laparotomy and investigate predictors of futility using the United Kingdom National Emergency Laparotomy Audit (NELA) database. A two-stage methodology was used; stage one defined a timeframe for futility using an online survey and steering group discussion; stage two applied this definition to patients enrolled in NELA December 2013–December 2020 for analysis. Futility was defined as all-cause mortality within 3 days of emergency laparotomy. Results showed that quantitative futility occurred in 4% of patients (7442/180,987) and median age was 74 years. Significant predictors of futility included age, arterial lactate and cardiorespiratory co-morbidity. Frailty was associated with a 38% increased risk of early mortality and surgery for intestinal ischaemia was associated with a two times greater chance of futile surgery. These findings suggest that quantitative futility after emergency laparotomy is associated with quantifiable risk factors available to decision-makers preoperatively and should be incorporated into shared decision-making discussions with extremely high-risk patients.^[5]

Another practical clinical example that often occurs in large hospitals is the decision about whether or not to continue resuscitation when the resuscitation efforts following an in-hospital cardiac arrest have been prolonged. A 1999 study in the Journal of the American Medical Association has validated an algorithm developed for these purposes.^[6]

As medical care improves and affects more and more chronic conditions, questions of futility have continued to arise. A relatively recent response to this difficulty in the United States is the introduction of the hospice concept, in which palliative care is initiated for someone thought to be within about six months of death. Numerous social and practical barriers exist that complicate the issue of initiating hospice status for someone unlikely to recover.^[2]

Another issue in futile care theory concerns the range of ethical options when care is determined to be futile. Some people argue that futile clinical care should be a market commodity that should be able to be purchased just like cruise vacations or luxury automobiles, as long as the purchaser of the clinical services has the necessary funds and as long as other patients are not being denied access to clinical resources as a result. In this model, Baby K would be able to get ICU care (primarily ventilatory care) until funding vanished. With rising medical care costs and an increase in extremely expensive new anti-cancer medications, the similar issues of equity often arise in treatment of end-stage cancer.^[2]

If futile care is not desired, a signed and notarized do not resuscitate (DNR) order can prevent these futile actions and treatments from being performed.

If futile care is desired, an advance directive can express wishes to receive any and all care that has a chance of prolonging life.

• Texas Futile Care Law
• Right to die
• Hospice
• Slow code

• Medical Futility Blog